Dylan has been doing amazingly well since the last time I posted anything. He is currently in the 10th grade at Santa Rita High and is in main-streamed classes with his friends. He was on the honor roll for the third quarter and the first semester. We got to attend a special assembly for the kids who made honor roll and Dyl got to go up on the stage and accept two certificates for his grades, he got a 3.0
He is taking yoga and drama as electives this semester, he really enjoys both classes! He is walking the track on the days when he can’t do the yoga but his 1 to 1 says he’s participating in yoga more often and really seems to enjoy it. His physical therapist at school says its helping to stretch out his muscles too. He’s very excited for the next play to be put on and is looking forward to it. He’s taking physical therapy, occupational therapy and speech therapy at school too. He’s excelling with classes right now and enjoys spending time with his friends at school!!
He is also currently taking speech, occupational and physical therapy after school, once a week for each session. And really improving there as well. Dylan is doing so well that he’s now walking without a walker!! We barely ever use the wheelchair, in fact at school he’s pushing the wheelchair with his backpack in the seat to most classes. He uses the walker when he gets tired at home, but for the most part is walking all by himself without assistance at all!!! His balance has improved a thousand percent. We took him to the doctor a week ago and they adjusted his leg brace (which made a world of difference) to stop the hyper-extension of his right knee and it fixed his balance as well. woohoo!!! He’s learning to cook in occupational therapy, and we all know how much Dylan LOVES to eat so that’s enjoyable for him. He’s made cupcakes, pizza and tacos so far. Now we know what he can make for us when we don’t wanna cook, lol!!
Dylan rides his two-wheel bike around the cul-de-sac at least once a weekend, he usually goes around the court at least twice and is doing great with that too. He’s also looking forward to a new bike. He may get one for his birthday.
Dylan seems to have more energy and loves to dance and sing, we sing along with the radio every night when we cook dinner. Look out American Idol, Dylan’s on the way!!! Heehee He hardly ever has to take a nap during the day anymore and is very energetic and wants to go out and do things all the time.
We took him camping in the dunes for Easter and he truly enjoyed the sun and outdoors. He even rode the quad up the dune next to the campsite. We have been encouraging him to ride the quad the last few times we’ve gone out and he’s been a little leery of it, but he just hopped on and took off that time. He rode with his Dad and his Uncle and they had a blast. I think the next time we go Dylan will be ready to ride Competition Hill ( the big dune).
We recently had a bake sale for Dylan’s medical account fund…he truly had a blast sitting out there and meeting everyone that came through the doors of the supermarket. What a wonderful day that was, people are so generous!!! Thank you to everyone who participated in the bake sale, it will go a long way to paying off Dylan’s medical expenses!!!!
We are anxiously awaiting news of our “dart vacation”. We met a really nice couple when we went to the Dunes for New Year’s and they have given us the wonderful opportunity to take a vacation wherever the dart lands. They traditionally go on a “dart vacation” every year and have decided to gift us with a trip of our own. They are going to New York City on Saturday, April 28th to throw the dart on Fox and Friends. Wherever the dart lands we get a week long vacation in that city. We are so excited to see where we will end up going!! Dylan is so jazzed to go on a trip, he really wants to take an airplane ride so bad!! He loves to fly. We will keep everyone posted on that news as we get it.
I think I have caught everyone up on the big news so far. I apologize for the long gap of no news…been a busy year. We will do better at keeping everyone in the loop from now on!! Please take care of yourselves and thank you, thank you, thank you for all your loving thoughts, prayers and support!!! Dylan is thriving and the power of prayer and wonderful thoughts are a big part of that.
Dylan's Story
Dylan is diabetic and on Dec 14, 2009 had complications from a cold and experienced many strokes on his brain stem. Dylan was in a coma for many weeks and is now in rehab. Read the entries below to keep up to date with his progress
Wednesday, April 25, 2012
Sunday, September 25, 2011
Friday, August 26, 2011
Monday, June 6, 2011
Sorry it’s been a while since we’ve done an update on Dylan. Life has been so busy lately.
He’s doing really well. He turned 15 on May 25th, we had a little get together at our house, kept it pretty low-key so he didn’t get overwhelmed. He seemed to enjoy himself! We made his favorite, home-made pizza.
He is now officially in the 10th grade. We spoke to the school a few weeks ago and he is all registered for next year and all the same services are set up for him already, which is fabulous as we really had to fight hard for what was implemented over the last few months! He will continue to have daily therapy sessions, with speech, physical and occupational therapy at school, he will continue to have front door service with the bus to/from school and he will continue to get the aid of a one-to-one to assist him daily in classes I am so glad that all of that transferred over, what a headache it was to get it all set up.
Dylan’s summer is starting off really well, he is currently getting after school care from his favorite nurse on a daily basis. The insurance company finally ok’d his nurse to pull full day shifts while school is out for the summer, that was like pulling teeth!!! Anyway he’s all set up with that and he really likes her so it worked out well.
He’s also been in to see his endo and his gastro doctors over the last few weeks. It seems like we are almost there with getting his blood sugar levels fixed. He’s a teen-ager though so it makes it hard to keep his sugar normal when his hormones are rioting. They are pleased with where he’s been though for the last few months! Dan took Dylan to the gastro last week and they are scheduling him this week to remove the g-tube!!! Woohooo!!! We are very excited about that!!! It should be a simple surgery that may require one to two stitches, if that. We are thrilled that it will be gone!! He’s been eating solid foods for over a year now. Dan and I have been working with him to slow down when he eats and he’s able to eat pretty much everything at this point. We just have him take small bites and eat slowly and he’s fine. He is also drinking un-thickened drinks a good portion of the time.
He’s doing really well with speech too, he’s loving singing songs to the radio, and it seems to help him speak in clearer and longer sentences. We let him listen to the radio whenever we go somewhere and it’s usually on when we are at home too.
Dylan is now walking over 200+ feet a day with his walker and we are planning on doing more than that soon ;) he’s also working on his balance and his right hand is getting used more every day! He continues to improve daily and is doing WONDERFUL!!!
Thank you again for all your thoughts, prayers and continued support! - Keri Skay
He’s doing really well. He turned 15 on May 25th, we had a little get together at our house, kept it pretty low-key so he didn’t get overwhelmed. He seemed to enjoy himself! We made his favorite, home-made pizza.
He is now officially in the 10th grade. We spoke to the school a few weeks ago and he is all registered for next year and all the same services are set up for him already, which is fabulous as we really had to fight hard for what was implemented over the last few months! He will continue to have daily therapy sessions, with speech, physical and occupational therapy at school, he will continue to have front door service with the bus to/from school and he will continue to get the aid of a one-to-one to assist him daily in classes I am so glad that all of that transferred over, what a headache it was to get it all set up.
Dylan’s summer is starting off really well, he is currently getting after school care from his favorite nurse on a daily basis. The insurance company finally ok’d his nurse to pull full day shifts while school is out for the summer, that was like pulling teeth!!! Anyway he’s all set up with that and he really likes her so it worked out well.
He’s also been in to see his endo and his gastro doctors over the last few weeks. It seems like we are almost there with getting his blood sugar levels fixed. He’s a teen-ager though so it makes it hard to keep his sugar normal when his hormones are rioting. They are pleased with where he’s been though for the last few months! Dan took Dylan to the gastro last week and they are scheduling him this week to remove the g-tube!!! Woohooo!!! We are very excited about that!!! It should be a simple surgery that may require one to two stitches, if that. We are thrilled that it will be gone!! He’s been eating solid foods for over a year now. Dan and I have been working with him to slow down when he eats and he’s able to eat pretty much everything at this point. We just have him take small bites and eat slowly and he’s fine. He is also drinking un-thickened drinks a good portion of the time.
He’s doing really well with speech too, he’s loving singing songs to the radio, and it seems to help him speak in clearer and longer sentences. We let him listen to the radio whenever we go somewhere and it’s usually on when we are at home too.
Dylan is now walking over 200+ feet a day with his walker and we are planning on doing more than that soon ;) he’s also working on his balance and his right hand is getting used more every day! He continues to improve daily and is doing WONDERFUL!!!
Thank you again for all your thoughts, prayers and continued support! - Keri Skay
Sunday, May 22, 2011
Subscribe to:
Comments (Atom)