Dylan's Story
Dylan is diabetic and on Dec 14, 2009 had complications from a cold and experienced many strokes on his brain stem. Dylan was in a coma for many weeks and is now in rehab. Read the entries below to keep up to date with his progress
Saturday, January 22, 2011
Tuesday, January 4, 2011
Dylan is home!
We are doing really well. Dylan is doing so good since he’s been home. We were so happy that he was able to come home in time for Christmas!! What a special treat for all of us! Dylan especially enjoyed the holidays, he got to see the family and friends and got to spend the day with them. He received loads of gifts and had a great day!
He’s doing really well in transitioning into a “normal” schedule at home. We have kept the same basic routine that they set up at Barrow’s. We have tweaked the times a bit for each meal as we both work and there is now a school schedule to cope with too. But for the most part he’s up by 7:30 and in bed by 9:00, which his neurologist has informed us is a good routine for him. We are very excited to get him into school, the school psychologist is working on an IEP for Dylan and there will be a CNA assigned for Dyl to stay with him all day at school to assist him with everything including, school work, getting to classes eating lunch and controlling his diabetes when we aren’t there. We should hopefully have everything in place for him to attend school by the end of this week. We were originally hoping to have him enrolled when the kids went back from winter break, but the school being closed for the holidays when Dyl was released from Barrow’s kind of threw a wrench in the process and we are still navigating the system to get him set up.
Dylan is meeting with an occupational therapist this morning to evaluate where he stands right now and to develop a therapy plan for him. From what we understand there will be therapy three times a week on an outpatient basis and I think there will be speech therapy, occupational therapy and physical therapy. The school is also supposed to do each of those therapies with him during the day. We are very excited to see what kind of progress he can make with that kind of schedule.
We have also set up various appointments to try and keep all Dylan’s care here in Tucson, we have found him a pediatrician to follow his case, we have contacted his old endocrinologist to set up a new intake appointment for him (he really likes this doctor) ;) and we are working on getting him set up with a neurologist here in town so that we don’t have to travel to Phoenix whenever he needs a checkup. I’m keeping my fingers crossed on that one, I have yet to make contact with that doctor, but I think since Dyl was a patient of his during the first phases of his DKA/Strokes he will take him again.
Dan and Dylan are planning an outing into the desert to run baja radio control cars within the next couple of weeks, Dylan is really looking forward to it! They used to go out and do that quite a bit before Dylan went into the hospital, so it’s getting back to “normal” ;) I’m excited for them.
Dylan started really walking quite well with his walker the other day, Dan had him going across the living room three revolutions and Dyl was balancing very well and able to keep his feet in a straight line. We have really been working on his balance and on basic stretching and building up the muscles in his arms and legs. Dylan has really shown a huge boost in his recovery in the time he’s been home. He’s excited to see his friends when he returns to school, although he’s not really thrilled about returning to school in general. He’s very happy to be able to spend time with the kids from his classes!
Thank you to all who stopped by to see Dyl when he returned home, it meant the world to him to see everyone!! - Keri
He’s doing really well in transitioning into a “normal” schedule at home. We have kept the same basic routine that they set up at Barrow’s. We have tweaked the times a bit for each meal as we both work and there is now a school schedule to cope with too. But for the most part he’s up by 7:30 and in bed by 9:00, which his neurologist has informed us is a good routine for him. We are very excited to get him into school, the school psychologist is working on an IEP for Dylan and there will be a CNA assigned for Dyl to stay with him all day at school to assist him with everything including, school work, getting to classes eating lunch and controlling his diabetes when we aren’t there. We should hopefully have everything in place for him to attend school by the end of this week. We were originally hoping to have him enrolled when the kids went back from winter break, but the school being closed for the holidays when Dyl was released from Barrow’s kind of threw a wrench in the process and we are still navigating the system to get him set up.
Dylan is meeting with an occupational therapist this morning to evaluate where he stands right now and to develop a therapy plan for him. From what we understand there will be therapy three times a week on an outpatient basis and I think there will be speech therapy, occupational therapy and physical therapy. The school is also supposed to do each of those therapies with him during the day. We are very excited to see what kind of progress he can make with that kind of schedule.
We have also set up various appointments to try and keep all Dylan’s care here in Tucson, we have found him a pediatrician to follow his case, we have contacted his old endocrinologist to set up a new intake appointment for him (he really likes this doctor) ;) and we are working on getting him set up with a neurologist here in town so that we don’t have to travel to Phoenix whenever he needs a checkup. I’m keeping my fingers crossed on that one, I have yet to make contact with that doctor, but I think since Dyl was a patient of his during the first phases of his DKA/Strokes he will take him again.
Dan and Dylan are planning an outing into the desert to run baja radio control cars within the next couple of weeks, Dylan is really looking forward to it! They used to go out and do that quite a bit before Dylan went into the hospital, so it’s getting back to “normal” ;) I’m excited for them.
Dylan started really walking quite well with his walker the other day, Dan had him going across the living room three revolutions and Dyl was balancing very well and able to keep his feet in a straight line. We have really been working on his balance and on basic stretching and building up the muscles in his arms and legs. Dylan has really shown a huge boost in his recovery in the time he’s been home. He’s excited to see his friends when he returns to school, although he’s not really thrilled about returning to school in general. He’s very happy to be able to spend time with the kids from his classes!
Thank you to all who stopped by to see Dyl when he returned home, it meant the world to him to see everyone!! - Keri
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