Sorry it’s been a while since we’ve done an update on Dylan. Life has been so busy lately.

He’s doing really well. He turned 15 on May 25th, we had a little get together at our house, kept it pretty low-key so he didn’t get overwhelmed. He seemed to enjoy himself! We made his favorite, home-made pizza.

He is now officially in the 10th grade. We spoke to the school a few weeks ago and he is all registered for next year and all the same services are set up for him already, which is fabulous as we really had to fight hard for what was implemented over the last few months! He will continue to have daily therapy sessions, with speech, physical and occupational therapy at school, he will continue to have front door service with the bus to/from school and he will continue to get the aid of a one-to-one to assist him daily in classes I am so glad that all of that transferred over, what a headache it was to get it all set up.

Dylan’s summer is starting off really well, he is currently getting after school care from his favorite nurse on a daily basis. The insurance company finally ok’d his nurse to pull full day shifts while school is out for the summer, that was like pulling teeth!!! Anyway he’s all set up with that and he really likes her so it worked out well.

He’s also been in to see his endo and his gastro doctors over the last few weeks. It seems like we are almost there with getting his blood sugar levels fixed. He’s a teen-ager though so it makes it hard to keep his sugar normal when his hormones are rioting. They are pleased with where he’s been though for the last few months! Dan took Dylan to the gastro last week and they are scheduling him this week to remove the g-tube!!! Woohooo!!! We are very excited about that!!! It should be a simple surgery that may require one to two stitches, if that. We are thrilled that it will be gone!! He’s been eating solid foods for over a year now. Dan and I have been working with him to slow down when he eats and he’s able to eat pretty much everything at this point. We just have him take small bites and eat slowly and he’s fine. He is also drinking un-thickened drinks a good portion of the time.

He’s doing really well with speech too, he’s loving singing songs to the radio, and it seems to help him speak in clearer and longer sentences. We let him listen to the radio whenever we go somewhere and it’s usually on when we are at home too.

Dylan is now walking over 200+ feet a day with his walker and we are planning on doing more than that soon ;) he’s also working on his balance and his right hand is getting used more every day! He continues to improve daily and is doing WONDERFUL!!!

Thank you again for all your thoughts, prayers and continued support! - Keri Skay