Hope everyone is doing well. We are doing really good here. We had a great visit with Dylan this weekend. He’s doing so awesome!! Unfortunately, he was pretty tired, he has a 17 year old roommate right now that stays up until 4am listening to loud music and talking on his phone ;( We are in the process of getting either Dyl or this other kid moved so Dyl can get sleep and be ready for therapy.
We spoke to his doctor this weekend and he’s thrilled with his progress! Dylan’s right side is really starting to come on now, he’s using his hand and arm quite a bit more and is more smooth with its use now. It’s only a matter of time until the right side catches up with the left side. He’s walking quite a bit with the walker and is doing weight lifting to strengthen his arms. He is on the way to having his blood sugar levels under control too. They are working on getting that fixed because he’s now eating larger portions of food and we just found out yesterday that the thickened water he was drinking is high in carbs and he loves it, usually has five of them with his meals. We are trying to get the endocrinologist to find a different thickened drink that isn’t high in carbs or figure out a different regiment for the food/drink he’s eating now. We should have that fixed by next week for sure.
Dylan had an ingrown toe nail last week and the podiatrist finally came, after us asking about it for a few weeks, and fixed his toe. Now he has no nail on his big toe, hopefully it heals quickly, I don’t know if he’ll be able to get his therapy boots on with his toe wrapped the way it is right now…
Dyl is initiating conversations more this week than he has in the last few weeks it’s very cool to see him just start talking to Dan or a staff member and he’s picking the conversation they are having.
His progress has been amazing and we are so proud of him!!! He’s able to do so much more than he was able to do even last weekend!! We are currently working on getting him enrolled in school through Hacienda there in Phx…they have a school program right on the Hacienda campus and they also have a program where they can bus the kids to local schools. We are very excited since we think that will really help Dylan’s loneliness and get his mind really busy. The staff at the hospital is willing to work the therapy sessions around the school day too, so that will be great…keeping our fingers crossed that he gets enrolled soon. ~Keri
1 comment:
Keri and Dan,
We are so glad to hear he is doing well. I hope he can get into the school. That would be so great!
Thanks for the updates. What a strong young man you have on your hands. He has come so very far. Hugs to your family.
Love,
Nikki and Jason Arnold
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