Easter Weekend

The weekend went well. Dylan had quite a bit of company up in Phoenix this past week! Dena, Chris, Demetri, Xander, Maddison, Meagan, Jeffrey, Jeff and Lynne all came up this weekend to see him! It was so nice for him to be able to see everyone! He really seemed to connect so well with Meagan! His eyes were wide open whenever she spoke and he was focused on her a lot! So great to see him react that way!! The kids were unable to come into the care facility because they don’t allow anyone under the age of 13 in there, but we took Dylan outside for quite a while a couple of times on Saturday so he could see them. He was very focused on Maddison when he saw her. He seemed to watch everyone when they were talking and really enjoyed having the family around! The kids were a little shy at first, but everyone was back to normal soon after they saw him.

Dylan has been working really hard on his sitting and doing the sit/stand machine he is also doing a great job with the decision making skills he is developing through eye contact. We try and ask him a lot of yes/no questions so he can make a choice that way too! His blood sugar levels seem to be getting back to “normal” as well. We spoke to the nurse this weekend and she said he’s pretty stable with the sugar levels lately, but they will continue to monitor him and make sure he stays that way. They have started doing the 24 hour insulin in the day time to carry him throughout the day and into the night and they boost the 24 hour insulin in the evening at 8pm with a 12 hour insulin. This seems to be working well. They are pleased with the results so far. The doctor indicated today that they may try and use novolog (short acting) insulin soon, but he hasn’t made a decision yet.

Dylan started really moving his mouth, as though he wants to speak, the other day and is doing that quite consistently!! We were so excited the first time we saw that!! He’s also doing a great job with picking his head and shoulders up off the bed and slightly repositioning himself on the bed. He’s done this quite a bit throughout the last couple of weeks!
We started a picture collage of all Dylan’s friends/family up on the cork board in his room, it’s a work in progress, but at least he sees everyone during the day that way. - Keri