Great progress!!

Dylan is doing really well. He is able to hold his head and shoulders up for longer periods of time than last week. He is also moving his mouth more (like he wants to speak) and when we put blistex on his lips he puckered up and then rubbed them together to spread it around. He’s also opening his mouth right away when someone asks him to, when they have to do the medicine and when they want to brush his teeth. We spoke to his doctor on Sunday and he said he’s noticed improvements in Dylan too. He said he’s more alert and seems to focus better than before, woohoo!! He’s going to have another doctor do an evaluation to determine the course of therapy that is correct for Dylan. We spent Saturday and Sunday working a bit more on his range of motion. He’s been pretty loose and is able to stretch out very well. We have also been using his boots more and his hand splints a bit too. It seems like he’s more used to the boots now, he doesn’t get mad right away when you put them on, he had them on for a good four hours on Sunday and they didn’t bother him at all. When I was talking to Dylan on Sunday he really seemed to concentrate on me very well, he looked right at me and when I’d pause it was like he was waiting to hear the rest of the conversation. He’s making so many improvements lately. His sugars are still on target…the doctor has him on just two insulins at this time, but they are still monitoring to make sure that will be enough. - Keri